It was her long-standing work on personhood and change among Wiradjuri Aboriginal people of central NSW that brought her critical lens to the representations of ‘personhood’ in people experiencing neurodegeneration. She argues that anthropology, through its understanding of ‘difference’ and its insights into diverse understandings of personhood, value, change and morality, has an important contribution to make to understanding 'living with dementia' as a social not medical experience. Her insights were prompted by the ‘doom and gloom’ she and her husband were thrust into when he was diagnosed with Alzheimer’s. She found conventional notions of ‘person-centred’ care were inadequate in understanding the relationships required of good dementia care, and is critical of the inadequacy of approaches to care and carer support.
She has co-authored two submissions to RCACQS, and is committed to research, critique and advocacy on behalf of familial and professional carers, including ensuring those with lived experience drive research and training agendas. She is completing analysis of ways in which biomedical paradigms fuel fear and stigma, and on the structural abuse of familial carers. She co-founded, with Assoc Prof Jane Mears, Dementia Reframed, to help combat negativity, and provide support for carers.