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The MEDicines and DEMentia (MEDDEM) Research Network

The MEDicines and DEMentia (MEDDEM) Research Network

University of South Australia
About The MEDicines and DEMentia (MEDDEM) Research Network
Have you ever had questions about medicines? 
We are seeking input on the areas that matter the most for future research in the field of medicines and dementia.

Tell us what you think!

We would like to hear from:
·         People living with dementia - https://research.unisa.edu.au/redcap/surveys/?s=LCDCX9DXKT 
·         Carers, family members and friends of people living with dementia - https://research.unisa.edu.au/redcap/surveys/?s=LCDCX9DXKT 
·         Healthcare professionals (including students) and/or staff members of healthcare organisations who have any experience providing or facilitating care for people with dementia - https://research.unisa.edu.au/redcap/surveys/?s=A387RYPMWD

Participation in this study will involve filling in an anonymous questionnaire. It will take you about 5-10 minutes.

To be eligible for this study you need to be at least 18 years old and Australian OR living and/or working in Australia.
For more information and to complete the questionnaire online go to: https://www.unisa.edu.au/research/qumprc/our-research/optimising-medicine-use/#QUMDementia

OR for a paper copy with reply paid envelope to be sent to you, contact 
Dr Emily Reeve, Phone: 08 8302 2757 or E-mail: priorities.dementia@unisa.edu.au

People living with dementia represent a diverse adult health population as they have multiple medical conditions and come from all socio-cultural backgrounds. Most people living with dementia take multiple medicines. Medicines can improve health and wellbeing, but all medicines have the potential to cause side effects. Currently, there is limited direct evidence on the benefits and harms of medicine use in people living with dementia, particularly those with multiple medical conditions. Research is being conducted across Australia to address these knowledge gaps. In the past, health research questions have been led by drug companies or researchers, with little involvement of clinicians and consumers. The MEDDEM research network is currently working to address this problem. We want to know which questions are important to people with dementia and their care team, to prioritise research in these areas. This way the outcomes of research are directly relevant to the care of people living with dementia. This will lead to improving how medicines are used, which will improve health outcomes in people living with dementia. Specifically, we want to identify the top 10 unanswered quality use of medicines questions for people living with dementia. These questions will be generated and prioritised by Australians living with dementia, carers, and health care providers (clinicians).

Useful resources for people living with dementia and their carers, family and friends
NPS MedicineWise: Medicines and dementia: what you need to know
Cognitive Decline Partnership Centre: Clinical guidelines for dementia – Consumer companion guide
Useful resources for healthcare professionals who provide care for people living with dementia
Dementia Australia: Clinical resources for health professionals
Dementia Training Australia: Too much of a good thing: fundamentals of deprescribing (online module)
Cognitive Decline Partnership Centre: Clinical guidelines for dementia
Cognitive Decline Partnership Centre: Evidence-based Clinical Practice Guideline for Deprescribing Cholinesterase Inhibitors and Memantine
Cognitive Decline Partnership Centre: Reducing medication complexity – the MRS GRACE tool
Western Australian Centre for Health and Ageing: Medication Appropriateness Tool for Comorbid Health conditions during Dementia (MATCH-D)
http://www.match-d.com.au/

(Please note, these resources were not developed by MEDDEM, they are included here as useful resources regarding medicines in people living with dementia.)

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