This presentation is a first-hand experience of supporting someone with a diagnosis of dementia, living and dying in an aged care facility.
The use of story, props, images, and the soundtrack of my father’s life, provides a powerful insight into what it was for Dad, and for me.
It covers perception and pain, memory and mood, food and family, sounds and silences.
The presentation advocates there’s much more to dying than having an advance care plan and deciding not to treat is not for the faint of heart. It speaks of grief well before death. It suggests that even in dying, deep connection can be maintained.
It also promotes other ways of caring and acknowledging death in an aged care facility as opposed to closed doors or curtains of silence. It speaks of not rushing to get the body out and the grace and care of the staff.
It acknowledges the impact of poor palliative care and suggests caring never ends.
This presentation is uplifting sad and powerful, and was presented (with emotional and positive feedback) at the Public Health in Palliative Care International Conference 2019.
I would be proud and honoured to present.