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International Dementia Conference
International Dementia Conference
International Dementia Conference

Dementia Doulas - creating a more consistent and community approach to end-of-life care. Why? Because no one should be going it alone.

Presentation Description

The non-clinical Dementia Doula role provides an innovative approach to supporting someone with advancing dementia and families during the final 6-12 months. Role development is responding to unequal end-of-life care practices when compared with other life-limiting illnesses (Crowther et al, 2013, van Reit Paap et al 2014). Consistent approaches do not exist for building supportive networks to ensure end-of-life plans are in place or enacted. By providing information, education and support, families are better prepared for future decision making.

Role benefits:
  • Timely implementation of tailored palliative care practices.
  • Decreased hospital presentations for short/long term admissions.
  • Ensuring a consistent approach and that end-of-life options are not limited.
  • Providing a conduit between non-clinical and clinical components of palliative care. The National Palliative Care Standard (2018) states a more collective approach is required due to the trajectory of dementia.
  • Empowering families in active care.
  • Supporting Aged Care Quality Standards: Consumer directed care – Standards 1 and 2.


Crowther, J., Wilson, K.C.M., Horton, S., and Lloyd-Williams, M. (2013) Palliative Care for dementia – time to think again? Q.J. Med. 106, 491-494
Palliative Care Australia (2018) National Palliative Care Standards – 5th Edition 2018, Palliative Care Australia, Canberra

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