You are using an old and unsupported browser. Most core functionality will not work. Please upgrade to a supported browser - Google Chrome

International Dementia Conference
International Dementia Conference
International Dementia Conference

We need to talk about grief and loss when dementia enters your relationship

Presentation Description

DOD for a couple facing dementia is not what it appears. It’s the Date of Diagnosis when their world and all their expectations change. It explains the shifts they are already experiencing in their relationship, but it does not begin to describe what is coming for them and their relationship. As dementia advances it creates multiple micro losses for both partners. Few outside the couple dynamic is aware of all they are facing and how much it impacts their ability to relate as a couple as caregiving needs increase. Information provided by well-meaning agencies frequently discuss symptom management and what help might be available. Some say particularly unhelpful things about the person with dementia still being who they always were. The reality is the person with dementia is changing, the partner adapts, they both grieve each change, and their losses include much of their intimate relationship. In a survey I conducted not one couple identified being provided help with finding ways to remain intimate by doctors, nurses, hospitals, or hospices, nor was the survivor’s intimacy loss addressed by grief staff. It’s a huge loss among many, and it’s outrageous that we aren’t talking about it. We need to do better.

Please be advised this website collects and stores your cookies to improve your experience. By using this website, you agree to our use of cookies. For more information, please refer to our The content in this presentation is communicated to you by the speaker organisation pursuant to the Copyright Act 1968. The presentation remains the property of the authors and cannot be reproduced, adapted, distributed, publicly performed or displayed without prior permission. Privacy Policy